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Publications

Ruth Northway

Wilson, N., Rees, S., Northway, R., Griffiths, P. (2022) Toward mainstream nursing roles specialising in the care of people with intellectual and developmental disability, Collegian, https://doi.org/10.1016/j.colegn.2022.03.004 (in press)


Sullivan, W. Heng, J. Bjorne, P. Northway, R. (2022) Ethics framework and recommendations to support capabilities of people with intellectual and developmental disabilities (IDD) during pandemics, Journal of Policy and Practice in Intellectual Disabilities, In press

 

Trip, H., Northway, R., Perkins, E., Mirfin-Veitch, B., Adams, R. (2022) Covid 19: Evolving challenges and opportunities for residential and vocational intellectual disability service providers, Journal of Policy and Practice in Intellectual Disabilities, In press 


Northway, R. Todd, S., Hunt, K., Hopes, P., Morgan, R., Shearn, J., Worth, R., Bernal, J. (2019) Nursing care at end-of-life: a UK based survey of the deaths of people living in care settings for people with intellectual disability, Journal of Research in Nursing, 24 (6) 366 - 382


Frankena, T., Naaldenberg, J., Cardol, M., Garcia-Iriarte, E., Buchner, T., Brooker, K., Embregts, P., Joosa, E., Crowther, F., Fudge Schormans, S., Schippers, A., Walmsley, J., O’Brien, P., Linehan, C., Northway, R., van Schrojenstein Lantman-de Walk, H., Leusink, G. (2019) A consensus statement on how to conduct inclusive health research, Journal of Intellectual Disability Research, 63 (1) 1 – 11


Hodges, Z., Northway, R. (2018) Exploring professional decision making in relation to safeguarding: a grounded theory study of social workers and community nurses in Community Learning (Intellectual) Disability Teams in Wales, Journal of Applied Research in Intellectual Disabilities, 32 (2) 435 - 445


Taggart, L. Truesdale, M., Carey, M.E., Martin-Stacey, L. Scott, J., Bunting, B., Coates, V., Brown, M., Karatzias, T., Northway, R., Clarke, J.N. (2018) Pilot feasibility study examining a structured diabetes self-management education programme DESMOND-ID, targeting HbA1c in adults with intellectual disabilities, Diabetic Medicine, 35 (1) 137 - 146


Brown, M., Taggart, M., Karatzias, T., Truesdale, M., Walley, R., Macrae, S., Northway, R., Carey, M., Davies, M. (2017) Improving diabetes care for people with intellectual disabilities: the perceptions and experiences of professional staff in diabetes and intellectual disability services, Journal of Intellectual Disability Research, 61 (5) 435 - 449


Kruger, B., Northway, R. (2017) An exploratory study of behavioural specialists’ experiences of involving service users in the development of their positive behavioural support plans, Journal of Intellectual Disabilities, DOI:  10.1177/1744629517730658


Northway, R. (2017) Participatory research. Part 1: Key features and underlying philosophy, International Journal of Therapy and Rehabilitation, 24 (10) 443 – 448

Northway, R. (2017) Participatory research. Part 2: Practical considerations, International Journal of Therapy and Rehabilitation, 24 (1) 488 – 493


Northway, R. Holland-Hart, D., Jenkins, R. (2017) Meeting the health needs of older people with intellectual disabilities: exploring the experiences of residential social care staff, Health and Social Care in the Community, 25 (3) 923 - 931


Northway, R. Jenkins, R., Holland-Hart, D. (2017) Training of residential social care staff to meet the needs of older people with intellectual disabilities who develop age-related health problems: an exploratory study, Journal of Applied Research in Intellectual Disabilities, 30 (5) 911 – 921 


Northway, R., Rees, S., Davies, M., Williams, S. (2017) Hospital passports, patient safety and person-centred care: A review of documents currently used for people with intellectual disabilities in the UK, Journal of Clinical Nursing, 26, 5160 - 5168 


MacRae, S., Brown, M., Karatzias, T., Taggart, L., Truesdale-Kennedy, M., Walley, R., Sierka, A., Northway, R., Carey, M., Davies, M. (2015) Diabetes in people with intellectual disabilities: a systematic review of the literature, Research in Developmental Disabilities, 47, 352 – 374


Northway, R., Parker, M., James, N., Davies, L., Johnson, K., Wilson, S. (2015) Research teaching in learning disability nursing: exploring the views of student and registered learning disability nurses, Nurse Education Today,  35 (12) 1155 – 1160


Taggart, L., Coates, V., Clarke, M., Bunting, B., Davies, M., Carey, M., Northway, R., Brown, M., Truesdale-Kennedy, M., Martin-Stacey, L., Scott, G., Karatzias, T. (2015)  A study protocol for a pilot randomised trial of a structured education programme for the self-management of Type 2 diabetes for adults with intellectual disabilities, Trials, 16: 148 DOI 10.1186/s13063-015-0644-y


Northway, R., Howarth, J., Evans, L. (2014) Participatory research, people with intellectual disabilities and ethical approval: making reasonable adjustments to enable participation, Journal of Clinical Nursing, 24, 573 – 581



Stuart Todd

Todd, S, Bernal, J., Walmsley, J. and O’Droscoll, D. (2021) When epidemics bring too many deaths, Community Living, April, 16-17



Flynn, S., Bailey, T., Hastings, R., Hatton, C., Abbott, D. W. F., Beyer, S., Bradshaw, J., Caton, S., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021)  Coronavirus and People with Learning Disabilities Study, Wave 3 Results.  Warwick, University of Warwick.



Flynn, S., Bailey, T., Hastings, R., Hatton, C., Abbott, D. W. F., Beyer, S., Bradshaw, J., Caton, S., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021). Coronavirus and People with Learning Disabilities Study: Wave 1 Results, March 2021, Full Report.  Warwick, University of Warwick.

 


Flynn, S., Caton , S., Gillooly, A., Bradshaw , J., Hastings , R., Hatton , C., Jahoda, A., Mulhall, P., Todd, S., Beyer, S., & Taggart, L. (2021). The experiences of adults with learning disabilities in the UK during the COVID-19 pandemic: qualitative results from Wave 1 of the Coronavirus and people with learning disabilities study: qualitative results from Wave 1 of the Coronavirus and people with learning disabilities study. Tizard Learning Disability Review, 26(4), 224-229. https://doi.org/10.1108/TLDR-09-2021-0027, https://doi.org/10.1108/TLDR-09-2021-0027

 


Hatton, C., Bailey, T., Bradshaw, J., Caton, S., Flynn, S., Gillooly, A., Jahoda, A., Maguire, R., Marriott, A., Mulhall, P., Oloidi, E., Taggart, L., Todd, S., Abbott, D., Beyer, S., Gore, N., Heslop, P., Scior, K., & Hastings, R. P. (2021). The willingness of UK adults with intellectual disabilities to take COVID-19 vaccines. Journal of intellectual disability research : JIDR, 65(11), 949–961. https://doi.org/10.1111/jir.12884

 

Flynn, S., Hatton, C., Hastings, R, P., Hayden, N., Caton, S., Heslop, P., Jahoda, A., et al. (2022) Access to and use of health and social care services for people with learning disabilities during COVID-19: a longitudinal study. Tizard Learning Disability Review. ISSN 1359-5474


Todd, S., Bernal, J., McCarron, M. Brearley, S. and Hunt, K. (accepted for publication) Forgotten lives, hidden deaths: people with intellectual disabilities in long term generic care settings.  Journal of Applied Research in Intellectual disabilities


Todd, S., Worth, R., Shearn J, Barr O, Forrester-Jones R , Jarvis P, Jones E, Kroll T, Lowe, K., Madden, P., McCarron, M., Read, S., Bernal, J.,  Hunt, K. Living and dying with an intellectual disability (accepted for publication) Journal of Applied Research in intellectual Disability


Tuffrey, I., Lam, C., Bernal, J., Finlayson, J., Taggart, L. and Todd, S. (accepted for publication) Communicating about death and dying with adults with intellectual disabilities (ID) who are terminally ill or bereaved: a UK-wide survey of ID support staff.  Journal of Applied Research in intellectual Disability


Hunt K., Worth R, Shearn J, Barr O, Forrester-Jones R, Jarvis P, Jones E, Kroll T, Lowe, K., Madden P, McCarron M, Read, S, Bernal, J.,  Todd, S., (2019) End of life care for people with intellectual disability in the UK: national survey findings and comparisons with the General Population, BMJ Supportive and Palliative Care. 2019 Oct 16. pii: bmjspcare-2019-001985. doi: 10.1136/bmjspcare-2019-001985. 


Todd, S., Brandford, S., Worth, R., Shearn, J. and Bernal, B. (2019) Place of death of people with Intellectual Disabilities: an exploratory study of death and dying within community disability service settings.  Journal of Intellectual Disability, DOI: 10.1177/1744629519886758


Northway, R., Todd, S., Morgan, R., Hopes, P., Shearn, J., Worth, E., Bernal, J. & Hunt, K. (2018) Nursing care at end of life: a UK based survey of the deaths of people living in care settings for people with Intellectual Disability Nursing care at end of life: a UK based survey of the deaths of people living in care settings for people with Intellectual Disability Journal of Research in Nursing.


Jane Bernal

Todd, S, Bernal, J., Walmsley, J. and O’Droscoll, D. (2021) When epidemics bring too many deaths, Community Living, April, 16-17


Todd, S, Bernal, J, Shearn, J, Worth, R, Jones, E, Lowe, K, et al. ( 2020) Last months of life of people with intellectual disabilities: A UK population‐based study of death and dying in intellectual disability community services. Journal of Applied Research in Intellectual Disabilities.


Hunt, K, Bernal, J, Worth, R, Shearn, J, Jarvis, P, Jones, E, et al. (2019) End-of-life care in intellectual disability: a retrospective cross-sectional study. Epub ahead of print . . BMJ Supportive and Palliative Care.


Lam, CKK, Bernal, J, Finlayson, J, Todd, CJ, Taggart, L, Boaz, A, et al. (2020) Maximising engagement and participation of intellectual disability staff in research: Insights from conducting a UK-wide survey. Journal of Intellectual Disabilities. https://doi.org/10.1177/1744629520924141.


Tuffrey-Wijne, I, Finlayson, J, Bernal, J, Taggart, L, Lam, CKK, Todd, S. (2020) Communicating about death and dying with adults with intellectual disabilities who are terminally ill or bereaved:  A UK-wide survey of intellectual disability support staff. Journal of Applied Research in Intellectual Disabilities. pp.1–12.


Sinai, A, Mokrysz, C, McCarthy, J, Dodd, K, Courtenay, K, Hassiotis, A, et al. (2018) Predictors of age of diagnosis and survival of Alzheimer’s disease in Down syndrome Journal of Alzheimer's Disease. 61(2), pp.717-28.


Eady, N, Sheehan, R, Sinai, A, Bernal, J, Bohnen, I, Bonell, S, et al. (2018) Impact of cholinesterase inhibitors or memantine on survival in adults with Down syndrome and dementia Br J Psychiatry. 212 (3), pp.155-60.


Todd, S, Shearn, J, Brandford, S, Bernal, J, Worth, R. (2019) Place of death of people with intellectual disabilities: An exploratory study of death and dying within community disability service settings. Journal of Intellectual Disabilities. First Published Research Article: https://doi.org/10.1177/1744629519886758.


Todd, S, Bernal, J, Worth, R, Shearn, J. (2018) Health and social profile of people with intellectual disabilities living in non‐intellectual disability long term care settings. Journal of Applied Research in Intellectual Disabilities. 31(4).


Bernal, J, Todd, S, Shearn, J, Hunt, K, Worth, R. (2018) Expecting the unexpected. Awareness of impending death among adults with Intellectual disabilities and paid carers in social care settings in the UK. Journal of Applied Research in Intellectual Disabilities. 31(4).


Bernal, J, Todd, S, Hunt, K. (2019) Why are the unanticipated deaths of people with Intellectual Disabilities important for their end of life care? Towards a typology of unanticipated death. Journal of Applied Research in Intellectual Disabilities. 


Bernal, J., Oloidi, E., Todd, S, Morgan, R. (2019) End of life care of people with Down Syndrome (DS). Journal of Applied Research in Intellectual Disabilities. 


Bernal, J, Finlayson, J, Lam, CKK, Taggart, L, Todd, S, Tuffrey-Wijne, I. (2018) Talking about dying with people with ID who have a terminal illness: a UK survey of support staff. Journal of Applied Research in Intellectual Disabilities. 31(4).




Richard May

Markham, V., Giles, A., & May, R. (2020). A systematic evaluation of prompt fading methods during conditional discrimination training. European Journal of Behaviour Analysis. https://doi.org/1080/15021149.2020.1719335


Markham, V., Giles, A., Rodrigues-Davies, G., Adshead, V., Tamiaki, G., & May, R., (2020). Application of within-stimulus errorless learning methods for teaching discrimination skills to individuals with intellectual and developmental disabilities: A systematic review. Research in Developmental Disabilities. https://doi.org/1016/j.ridd.2019.103521


Markham, V., Giles, A., & May, R. (2018). Evaluating Efficacy and Preference for Prompt Type During Discreet-Trial Teaching. Behavior Modification. https://doi.org/10.1177/0145445518792245


Still, K., May, R., Rehfeldt, R. A., Whelan, R., & Dymond, S. (2015). Facilitating derived requesting skills with a touchscreen tablet computer for children with autism spectrum disorder. Research in Autism Spectrum Disorders


Still, K., Rehfeldt, R. A., Whelan, R., May, R., & Dysmond, S. (2014). Faciltating requesting skills using high-tech augmentative and alternative communication devices with individuals with autism spectrum disorders: A systematic review. Research in Autism Spectrum Disorders, 8(9), 1184-1199. https://org.10.1016/j.rasd.2014.06.003


Edward Oloidi

Flynn, S., Bailey, T., Hastings, R., Hatton, C., Abbott, D. W. F., Beyer, S., Bradshaw, J., Caton, S., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021)  Coronavirus and People with Learning Disabilities Study, Wave 3 Results.  Warwick, University of Warwick.

 

Flynn, S., Bailey, T., Hastings, R., Hatton, C., Abbott, D. W. F., Beyer, S., Bradshaw, J., Caton, S., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021). Coronavirus and People with Learning Disabilities Study: Wave 1 Results, March 2021, Full Report.  Warwick, University of Warwick


Hatton, C., Bailey, T., Bradshaw, J., Caton, S., Flynn, S., Gillooly, A., Jahoda, A., Maguire, R., Marriott, A., Mulhall, P., Oloidi, E., Taggart, L., Todd, S., Abbott, D., Beyer, S., Gore, N., Heslop, P., Scior, K., & Hastings, R. P. (2021). The willingness of UK adults with intellectual disabilities to take COVID-19 vaccines. Journal of intellectual disability research : JIDR, 65(11), 949–961. https://doi.org/10.1111/jir.12884


Oloidi, E.O. Northway, R. Prince. J. (2020) People with intellectual disabilities living in the communities is bad enough let alone…having sex’’: Exploring societal influence on social care workers’ attitudes, beliefs and behaviours towards support for personal and sexual relationship needs. Journal of Applied Research in Intellect Disabilities; 1–12


Bernal, J., Oloidi, E., Todd, S, Morgan, R. (2019) End of life care of people with Down Syndrome (DS). Journal of Applied Research in Intellectual Disabilities. 




Victoria Markham

Markham, V., Giles, A., & May, R. (2020a). Evaluating efficacy and preference for prompt type during discrete-trial teaching. Behavior Modification, 44, 49-69. https://doi.org/10.1177/0145445518792245


Markham, V., Giles, A., & May, R. (2020b). A systematic evaluation of prompt fading methods during conditional discrimination training. European Journal of Behavior Analysis. https://doi.org/10.1080/15021149.2020.1719335


Markham, V. A., Giles, A. F., Roderique-Davies, G., Adshead, V., Tamiaki, G., & May, R. J. (2019). Applications of within-stimulus errorless learning methods for teaching discrimination skills to individuals with intellectual and developmental disabilities: A systematic review. Research in Developmental Disabilities. https://doi.org/10.1016/j.ridd.2019.103521


Giles, A. F., & Markham, V. A. (2017). Comparing book- and tablet-based Picture Activity Schedules: Acquisition and preference. Behavior Modification, 41, 647-664. https://doi.org/10.117/0145445517700817




Lance Watkins

Watkins, L.V., Linehan, C., Brandt, C., Snoeijen-Schouwenaars, F., McGowan, P. and Shankar, R., (2022). Epilepsy in adults with neurodevelopmental disability-what every neurologist should know. Epileptic Disorders1(1).

 

Watkins, L., Isaac, A., Hanson, C., Hammett, J. and Wickens, A., (2021). Intellectual disability, epilepsy and bone health: Quality improvement in a specialist epilepsy service. British Journal of Learning Disabilities.

 

O’Dwyer, M., Watkins, L., McCallion, P., McCarron, M., Henman, M. and Shankar, R., (2021). Optimising medicines use in older adults with intellectual disability who have epilepsy: challenges and perspectives.

 

Watkins, L., O’Dwyer, M., Kerr, M., Scheepers, M., Courtenay, K., Shankar, R. (2020) Quality improvement in the management of people with epilepsy and intellectual disability: the development of clinical guidance. Expert Opinion on Pharmacotherapy. 21(2), pp.173-81.

 

Watkins, L., Reuber, M, Perera, B., Courtenay, K., Banks R., Murphy, E., Angus‐Leppan, H., Shankar, R. (2020) Valproate prescribing practices for women with intellectual disability across Europe. Acta Neurologica Scandinavica.

 

Watkins, L., O’Dwyer M., Oak, K., Lawthom, C., Maguire, M., Thomas, R., Shankar, R. (2020) The evidence for switching dibenzazepines in people with epilepsy. Acta Neurologica Scandinavica.

 

Watkins, L.V. and Angus-Leppan, H., (2020). Valproate, sexual health, and men: a narrative review. Epilepsy & Behavior, 103, pp.106-835.

 

Watkins, L., O’Dwyer, M. and Shankar, R., (2019). New anti-seizure medication for elderly epileptic patients. Expert opinion on pharmacotherapy, pp.1-8.

 

Dunstall, H.M., Walton, C., Watkins, L.V., Isaac, A.B, El Tahir, M. (2019). Catatonia in individuals with Autism Spectrum Disorder and intellectual disability: a discussion of four cases. Advances in Mental Health and Intellectual Disabilities. 


Watkins, L.V., Cock, H., Angus-Leppan, H,. Morley, K., Wilcock, M., Shankar, R, (2018) Valproate MHRA guidance: limitations and opportunities, Frontiers in Neurology.


Watkins, L., Cock, H.R., Angus-Leppan, H. and Shankar, R., (2018). Valproate and the Pregnancy Prevention Programme-exceptional circumstances. British Journal of General Practice.

 

Watkins, L., Shankar, R. and Sander, J.W., (2018). Identifying and mitigating Sudden Unexpected Death in Epilepsy (SUDEP) risk factors. Expert review of neurotherapeutics, 18(4), pp.265-274.

 

Watkins, L.V., Pickrell, W.O., Kerr, M.P., (2018) Treatment of psychiatric comorbidities in patients with epilepsy and intellectual disabilities: Is there a role for the neurologist? Epilepsy and Behavior.

 

Watkins, L.V., and Kerr, M.P., (2018). Intellectual Disability care: Care provision for adults with epilepsy and Intellectual Disability, Epilepsy professional pp. 18-21.

 

Kerr, M.P., Watkins, L.V., Angus-Leppan, H., Goodwin, M., Hanson, C., Roy, A. and Shankar, R., (2018). The provision of care to adults with an intellectual disability in the UK. A Special report from the intellectual disability UK chapter ILAE. Seizure-European Journal of Epilepsy, 56, pp.41-46.

 

Watkins, L. and Shankar, R., (2018). Reducing the Risk of Sudden Unexpected Death in Epilepsy (SUDEP). Current treatment options in neurology, 20(10), p.40.

 

Shankar, R., Watkins, L.V., and Mclean, B., (2017) Communicating risk: Discussion and management of SUDEP, Epilepsy professional

 

Watkins, L.V. (2017) Is the MRCPsych fit for purpose?. The Journal of Mental Health Training, Education and Practice, 12(5), pp.331-336.

 

Watkins, L.V., and Colgate, R., (2016). Improving healthcare for people with intellectual disabilities: the development of an evidence-based teaching programme. Advances in Mental Health and Intellectual Disabilities, 10(6), pp.333-341.


Sun, J. J., Perera, B., Henley, W., Angus-Leppan, H., Sawhney, I., Watkins, L., et al, (2022). Epilepsy related multimorbidity, polypharmacy and risks in adults with intellectual disabilities: a national study. Journal of Neurology, pp.1-11.



Carmel Conn

Knight, C., Clegg, Z., Conn, C., Hutt, M. and Crick, T. (accepted) Aspiring to include versus implicit “othering”: Teachers’ perceptions of inclusive education in Wales, British Journal of Special Education.


Conn, C. and Hutt, M. (2020) Successful futures for all? Additional learning needs in Wales in the light of curriculum reform, British Journal of Special Education. DOI: 10.1111/1467-8578.12307.


Conn, C., Lewis, M. and Matthews, S. (2020) An analysis of educational dialogue as support for learning for young pupils with autism in mainstream schools, International Journal of Inclusive Education 24(3): 251-265. 


Conn, C. (2019) Socio-material realities of inclusive pedagogy for autistic pupils in mainstream primary schools in the UK, Scandinavian Journal of Disability Research 21(1): 262-270.


Conn, C. (2019) Do educational practitioners invest in specialised discourses of autism? Professional knowledge landscapes of teachers and teaching assistants in mainstream schools, British Journal of Special Education. DOI:10.1111/1467-8578.12288.


Barnard-Dadds, T. and Conn, C. (2018) Challenges of listening to an autistic pupil in a person-centred planning meeting, Journal of Research in Special Educational Needs18(S1): 15-24.


Conn, C. (2018) Pedagogical intersubjectivity, autism and education: can teachers teach so that autistic pupils learn? International Journal of Inclusive Education 22(6): 594-605.


Stacey Rees

Wilson, N., Rees, S., Northway, R., Griffiths, P. (2022) Toward mainstream nursing roles specialising in the care of people with intellectual and developmental disability, Collegian, https://doi.org/10.1016/j.colegn.2022.03.004 (in press) 


Northway, R., and Dix, A. (2019) Improving equality of healthcare for people with learning disabilities, Nursing Times, 115 (4), pp.27 – 31


Northway, R., Cushing, K., Duffin, S., Payne, S., Price, P., Sutherland, K. (2017) Supporting people across the lifespan: the role of learning disability nurses, Learning Disability Practice, 20 (3), pp.22 – 27

Northway, R. (2019) Commentary: In search of care strategies for distressed people with communication difficulties and learning disability in palliative care settings, the lived experience of registered learning disability nurses and palliative care professionals, Journal of Research in Nursing, 24 (6) 401 - 402 


Northway, R. (2019) The power (and dangers) of assumptions, Journal of Intellectual Disabilities, 23 (2) 147 - 148


Northway, R. (2019) A sense of achievement, Journal of Intellectual Disabilities, 23 (1) 3 – 4

Northway, R. (2018) The right support at the right time, Journal of Intellectual Disabilities, 22 (4) 313 -314


Northway, R. (2018) The need to move upstream, Journal of Intellectual Disabilities, 22 (3) 211 – 212


Northway. R. (2018) Knowledge, time and change, Journal of Intellectual Disabilities, 22 (2) 111 – 112


Northway, R. (2018) Reflections on labelling and counting, Journal of Intellectual Disabilities, 22 (1) 3 - 4


Northway, R. (2018) Review: In search of care strategies for distressed people with communication difficulties and a learning disability in palliative care settings: the lived experiences of registered learning disability nurses and palliative care professionals, Journal of Research in Nursing, DOI: 10.1177/1744987118764712


Northway, R. (2017) Laying the foundations for health, Journal of Intellectual Disabilities, 21 (1) 3 – 4

Northway, R. (2017) Developing resilience or challenging harm? Journal of Intellectual Disabilities, 


Northway, R. (2017) Perspectives: The health of people with intellectual disabilities: realising the future potential of all nurses to reducing health disparities, Journal of Research in Nursing, 22 (8) 637 – 640


Northway, R. (2017) A framework for health and social care research, Nurse Researcher, 25 (3) 5


Gates, B., Northway, R. (2016) Looking back to move forward: reflections and projections on Journal of Intellectual Disabilities, Journal of Intellectual Disabilities, 20 (1) 3 – 4


Northway, R. (2016) Listening, learning and acting: working with people who use services to plan and undertake research, Journal of Clinical Nursing, 25 (5-6) 573-574


Northway, R. (2016) Facing the research challenge, Journal of Intellectual Disabilities, 20 (3) 211 – 212


Northway, R. (2016) Rights and wrongs, Journal of Intellectual Disabilities, 20 (4) 311 – 312


Northway, R. (2015) A question of priority, Journal of Intellectual Disabilities, 19 (1) 3 – 4


Northway, R. (2015) An age-old problem? Journal of Intellectual Disabilities, 19 (2) 101 – 102


Northway, R. (2015) What does independence mean? Journal of Intellectual Disabilities, 19 (3) 203 – 204


Northway, R. (2015) The importance of family Journal of Intellectual Disabilities, 19 (4) 309 – 310

Ruth Northway

Jenkins, R., Northway, R., Holland-Hart, D., Jarvis, P. (2016) Residential support workers meeting the health needs of older people with learning disabilities: An exploration of their developmental and support needs, Llais, Autumn 2016, 18 – 20



Katja Valkama


Katsui, H., Kröger, T. & Valkama, K. (2018). Finland Fact Sheet on Social Care & Support Services Sector for Persons with Disabilities.

Miettinen, S., Koskinen, R., Mäki, S., Mäntyneva, P. & Valkama, K. (2019). Kokeiluista käytäntöön. Kelan uudet kuntoutukseen hakemisen mallit mahdollisuuksina päästä joustavammin kuntoutukseen. Kela: Helsinki. 

Heikkilä, J., Tiittanen, H. & Valkama, K. (2018). Stages of reforming the nursing service in the republic of Kazakhstan. plans and prospects. 


Beth Pickard


Pickard, B (Forthcoming), 'The Learning Profile as a Recipe for Success: Instrumental Tuition for Musicians Who Have Down’s Syndrome' Down's Syndrome Association Journal.

Pickard, B (2019), 'A Framework for Mediating Medical and Social Models of Disability in Instrumental Tuition for Children with Down Syndrome,' Research Studies in Music Education. DOI: 10.1177/1321103X19855416

Pickard, B (2019), 'Demystifying the Process of Engaging with the Disability and Dyslexia Service in Higher Education' Journal of Inclusive Practice in Further and Higher Education, no. 10.1, pp. 40-58.



Catherine Bright


Baburaj, R., Dunstall, H., Bruno, T., Bright, C., Richings, C., Lawthom, C., “Joint Epilepsy Clinics for people adults with Intellectual disability – the development of an integrated epilepsy pathway” (in press)


Baburaj , R.,  Dunstall, H., Bright, C., Lawthom, C.,  “Case Reports of improvement in behaviour following switching of patients with Intellectual Disability and epilepsy from Levetiracetam to Briveracetam (In press) Advances in Mental Health  and Intellectual Disabilities


Kathy Lowe


Davies, B., Lowe, K., Morgan, S., John-Evans, H. &  Fitoussi, J. (2019) An evaluation of the effectiveness of positive behavioural support within a medium secure mental health forensic service, The Journal of Forensic Psychiatry & Psychology, 30:1, 38-52


Davies, B., Griffiths, J., John-Evans, H., Lowe, K., Howey, S. & Artt, A (2016) Changes in staff confidence and attributions for challenging behaviour after training in positive behavioural support within a forensic mental health setting: a replication study with follow-up. The Journal of Forensic Psychiatry & Psychology. 


Denne, L., Jones, E., Lowe, K, Jackson Brown, F., and Hughes, C., (2015) Putting positive behavioural support into practice: the challenges of workforce training and development BILD, International Journal of Positive Behavioural Support, 5, 2, 43–54 


Davies, B, Griffiths, J., Liddiard, K., Lowe, K., & Stead, L. (2015): Changes in staff confidence and attributions for challenging behaviour after training in positive behavioural support within a forensic medium secure service. The Journal of Forensic Psychiatry & Psychology, 26(6), 847-861. 


Edwin Jones


Reid, K., and Jones, E., (in press) Positive Behaviour Support and Safe wards as part of a successful data-driven Restraint Reduction Strategy in one NHS Trust.  International Journal of Positive Behavioural Support.


Leitch, S., Triantafyllopoulou, P., Jones, E., (in press) The Impact of the BILD Centre for the Advancement of PBS (CAPBS) Coaches Programme on Changing Workplace Practice: Part One - Coaches’ Views. International Journal of Positive Behavioural Support


Jones, E., (2019) The All Wales Challenging Behaviour Community of Practice: Update; International Journal of Positive Behavioural Support, 9 (2), 57–60 BILD


Jones, E., Macdonald, A., Leitch, S., and Lowe, K. (2019), Infographic and accessible description of Positive Behavioural Support UK PBS Alliance


Allen, D., Jones, E., and Nethell, G (2018) ‘Clinical outcomes of staff training in positive behavioural support to reduce challenging behaviour in adults with intellectual disability: Further thoughts on intervention, implementation and interpretation’. International Journal of Positive Behavioural Support, 8 (1), 4–11


Denne, L., Jones, E., Lowe, K., Jackson Brown, F., and Hughes, C., (2015) Putting positive behavioural support into practice: the challenges of workforce training and development BILD, International Journal of Positive Behavioural Support, 5 (2), 43–54


Jones. E., Lowe, K., Brown, S., Albert, L., Saunders, C., Haake, N., Leigh, H. (2013) Active Support as a Primary Prevention Strategy for Challenging Behaviour. International Journal of Positive Behavioural Support, 3 (1), pp.16-30. BILD Publications 


Jones, E. (2013) Back To the Future: Developing Competent Services for People with Intellectual Disabilities and Challenging Behaviour, Advances in Mental Health and Intellectual Disabilities, 7 (1), pp. 5 - 17



Steve Walden

Barden, O. and Walden, S. J., (2022) ‘Antonia's Story: Bringing the past into the future.’ British Journal of Learning Disabilities DOI: 10.1111/bld.12447 (In Press)

 

Barden, O. and Walden, S. J., (2021). The metanarrative of learning disability: Vulnerability, unworthiness, and requiring control. In Metanarratives of Disability (pp. 77-93). Routledge.


Walden, S. J., Evans, S. L., and Mulville, J., (2017). Changes in Vickers hardness during the decomposition of bone: possibilities for forensic anthropology. Journal of the Mechanical Behavior of Biomedical Materials, 65, pp.672-678.

 

Walden, S. J., Evans, S. L., Mulville, J., Wilson, K., and Board, S., (2021). Progressive dehydration in decomposing bone: a potential tool for forensic anthropology. Journal of Thermal Analysis and Calorimetry, 143(5), pp.3517-3524.


Walden, S. J., Mulville, J., Rowlands, J. P., and Evans, S. L., (2018). An analysis of systematic elemental changes in decomposing bone. Journal of forensic sciences, 63(1), pp.207-213.

Ruth Northway


Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2018) Essentials of Nursing Practice, 2nd edition. London: SAGE


Northway, R., Jenkins, R. (2017) Safeguarding Adults in Nursing Practice, 2nd edition, London: SAGE

Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE


Northway, R., Jenkins, R. (2013) Safeguarding adults in Nursing Practice, London: SAGE




Carmel Conn


Conn, C. and Murphy, A. (editors) (in press) Inclusive Pedagogies for Early Childhood Education: Respecting and Responding to Differences in Learning. Routledge.



Conn, C. (2019) Autism, Pedagogy and Education: Critical Issues for Value-Based Teaching (Palgrave Pivot Series). Basingstoke, Hampshire: Palgrave Macmillan.


Conn, C. (2014) Autism and the Social World of Childhood: A Sociocultural Perspective on Theory and Practice. Oxford and New York: Routledge.


Ruth Northway


Northway, R., Sorensen, D., Svenningsen, H., Moreno-Sanchez, P., Valkama, K. (2021) Increasing sustainability of healthcare with technology. In Saminin-Tuomaala, M., Valkama, K., Saarikoski, S., (eds) Luovat,  kestävät ja innovatiiviset opetus- jakehittämismenetelmät ja -ratkaisut sosiaali- ja terveysalalla. https://www.theseus.fi/bitstream/handle/10024/504649/B164_SeAMK.pdf?sequence=4&isAllowed=y   pp 170 – 182


Northway, R., Wilson, N., Rees, S. (2022) Growing Older. In Atherton, H. Crickmore, D. (eds) Intellectual Disabilities Towards Inclusion (7th edition), Edinburgh: Elsevier. pp 467 – 482


Northway, R. (2019) Moving models: leading through constant change. In Sheerin, F., Curtis, E.A. (eds) Leadership for Intellectual Disability Service, Abingdon, Oxford: Routledge. 23 – 43


Delves-Yates, C., Elcock, K., Hall, C., Northway, R., Trenowith, S. (2018) What is nursing? What is a nurse? In Delves-Yates, C., Elcock K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2018) Essentials of Nursing Practice, 2nd Ed. London: SAGE. 


Emerson, K., Northway, R. (2018) Patient, service user, family and carer perspectives. Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2018) Essentials of Nursing Practice, 2nd Ed. London: SAGE. 


Northway, R. (2018) Introduction to the sociological context of nursing. Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2018) Essentials of Nursing Practice,2nd Ed.  London: SAGE. 


Northway, R., Beech, I. (2018) Ethics. In Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2018) Essentials of Nursing Practice, 2nd Ed. London: SAGE. 


Northway, R. (2017) Conducting research with vulnerable groups. In Glasper, A., Rees, C. (eds) Nursing and Healthcare Research at a Glance, Oxford: Wiley Blackwell. 130- 131


Northway, R. (2017) Conducting focus groups with people with learning disabilities. In Glasper, A., Rees, C. (eds) Nursing and Healthcare Research at a Glance, Oxford: Wiley Blackwell. 150 – 151


Northway, R. (2017) People with learning disabilities as co-researchers. In Glasper, A., Rees, C. (eds) Nursing and Healthcare Research at a Glance, Oxford: Wiley Blackwell. 152 – 153


Northway, R. (2017) Leadership and patient care outcomes. In Curtis, E.A., Cullen, J.G. (eds) Leadership and Change for the Health Professional, London: Open University Press. 149 – 160


Northway, R. (2017) Networking in practice. In Keenan, P.M., Doody, O. (eds) Nursing in Intellectual Disabilities: Irish and International Perspectives, Dublin: Nursing Network in Intellectual Disabilities. 57 - 66


Delves-Yates, C., Elcock, K., Hall, C., Northway, R., Trenowith, S. (2015) What is nursing? What is a nurse? In Delves-Yates, C., Elcock K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE. 3 – 14


Emerson, K., Northway, R. (2015) Patient, service user, family and carer perspectives. Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE. 185 – 196

Northway, R. (2015) Introduction to the sociological context of nursing. 


Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE . 651 – 662


Northway, R., Beech, I. (2015) Ethics. In Delves-Yates, C., Elcock, K., Everett, F., Hall, C., Jenkins, R., Northway, R., Trenoweth, S., Wright, W. (eds) (2015) Essentials of Nursing Practice, London: SAGE. 65 – 76


Beth Pickard


Pickard, B (2019), Valuing Neurodiversity: A humanistic, non-normative model of music therapy exploring Rogers’ Person-centred Approach with young adults with autism spectrum conditions. in E Coombes, H Dunn, E Maclean, H Mottram & J Nugent (eds), Music Therapy and Autism Across the Lifespan: A Spectrum of Approaches .Jessica Kingsley Publishers, London, p. 297-330.


Michelle Culwick


Culwick, M. & Wallace, C (2012) Chapter for edited book; Inter-professional and inter-agency Practice in the Human Services: Learning to Work Together (Pearson Education).


Culwick, M. (2012) Chapter for edited book; Sex Offenders Punish, Help Change or Control? Theory, Policy and Practice explored. (Routledge)


Carmel Conn

Conn, C. (2019) Autism, Pedagogy and Education: Critical Issues for Value-Based Teaching (Palgrave Pivot Series). Basingstoke, Hampshire: Palgrave Macmillan.



Richard May

May, R. J., & Dymond, S. (2014). Facilitating emergent verbal repertoires in individuals with autism spectrum disorders and other developmental disorders: Insight from behavior analysis. In J. Arciuli & J. Brock (Eds.), Communication in Autism (pp. 29-52). [Chapter 2] (Trends in Language Acquisition Research; Vol. 11). John Benjamin Publishing Company. https://doi.org/10.1075/tilar.11.03may



Lance Watkins

Kerr, M, P. and Watkins, L, V. Epilepsy in Intellectual Disabilities, New edition Seminars in Intellectual Disability Psychiatry, Royal College of Psychiatrists. Edited by Dr Mark Scheepers and Professor Mike Kerr. (In Print)

 

Shankar, R., Watkins, L. and Brown, S., 2019. Intellectual Disability and Epilepsy. In Physical Health of Adults with Intellectual and Developmental Disabilities (pp. 187-202). Springer, Cham.

 

Spolton-Dean, C., Watkins, L. V., Balachandran Nair, D., Bayoumi-Ali, M.,  Ali, M., Vitello, S. Wales Deanery. How to: Get smart with smart phones in medical education, 



Steve Walden


Barden,O. and Walden, S. J., The metanarrative of learning disability: Vulnerability, unworthiness, and requiring control. In Metanarratives of Disability (pp.77-93). Routledge.



Stacey Rees


Northway, R., Wilson, N., Rees, S. (2022) Growing Older. In Atherton, H. Crickmore, D. (eds) Intellectual Disabilities Towards Inclusion (7th edition), Edinburgh: Elsevier. pp 467 – 482


Northway, R., Rees, S., Davies, M., Williams, S. (2017) Hospital passports, patient safety and person-centred care: A review of documents currently used for people with intellectual disabilities in the UK, Journal of Clinical Nursing, 26, 5160 - 5168 

Ruth Northway


Northway, R., Oloidi, E., & Rees, S., (2020) Learning Disability Health Communication Tool - Final Report. Welsh Government  


Northway, R., Oloidi, E., Morgan, R., Price, K., & Churcher, C. (2020) Learning Disability Educational Framework for Healthcare Staff in Wales - Final Report. Welsh Government


Northway, R. (2015) Learning and Intellectual Disability Nursing Academic Network Research Work Stream (2015) Research in Learning Disability Nursing: A Position Paper, Edinburgh: NESS



Stuart Todd

Flynn, S., Hayden, N., Clarke, L., Caton, S., Hatton, C., Hastings, R. P., Abbott, D., Beyer, S., Bradshaw, J., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Paris, A., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021). Coronavirus and people with learning disabilities study Wave 3 Results: September 2021 (Full Report). Coventry, UK: University of Warwick. ISBN: 978-1-871501-37-7. Report available at https://warwick.ac.uk/fac/soc/cedar/covid19-learningdisability/results/wave3results 


Flynn, S., Bailey T., Hastings, R. P., Hatton, C., Abbott, D., Beyer, S., Bradshaw, J., Caton, S., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021). Coronavirus and people with learning disabilities study Wave 1 Results: March 2021 (Full Report). Coventry, UK: University of Warwick. ISBN: 978-1-871501-36-0

 


Beth Pickard


Pickard, B (2020), 'A Qualitative Content Analysis of Welsh Universities’ Disability Service Websites and Consideration of Their Potential Impact on Recruitment of Diverse Learners: A Critical Disability Studies Perspective', Paper/Report presented to the USW Equality Steering Group, 7th May 2020. 


Culwick Michelle


Dacey, B, Wallace, C, Culwick, M & Llewellyn, M (2014), Maximising the Sustainability and effectiveness of practice learning opportunities in the social work degree. Care Council for Wales.


Carmel Conn


Newton, N., Power, S., Taylor, C., Chapman, S., Conn, C., Davies, O., Hughes, S., Kneen, J. and Lewis, H. (2019) Successful futures for all: Explorations of curriculum reform: Final report. Cardiff: WISERD.


Haywood, S., Hutt, M., Roberts, S., Conn, C., Duggan, B. and Grover, T. (2019) Implementation of the ‘Evaluation of Teaching and Learning Framework’ within the EAS region. Education Achievement Service for South East Wales.


Thomas, H., Duggan, B., Glover, A., Lane, J., Conn, C., Evans, K., Drew, S. and Kelland, A. (2019) Research to establish a baseline of the SEN System in Wales. GSR report number 8/2019. Cardiff: Welsh Government.  



Katjama Valkama


Katsui, H. and Valkama, K. (2021) European Semester 20202-2021 country fiche on disability equality. Finland

Katsui, H., Valkama, K. & Kröger, T. (2019). Country report on Living independently and being included in the community - Finland

Katsui, H., Valkama, K. & Kröger, T. (2019). Country report on the European Semester - Finland 

Valkama, K., Katsui, H. & Kröger, T. (2018). Country report on the European Semester - Finland 

Katsui, H., Valkama, K. & Kröger, T.  (2018). DOTCOM. Suomi. 



Lance Watkins


Management of Epilepsy in adults with intellectual disability RCPsych College Report (CR203, 2017)

 

ILAE Report: The provision of care to adults with an intellectual disability in the UK: A survey by the British Chapter of the ILAE. (2017)

 

Prescribing AEDs for people with epilepsy and intellectual disability. RCPsych College Report (CR206, 2017). Deputy Editor



Edward Oloidi


Flynn, S., Hayden, N., Clarke, L., Caton, S., Hatton, C., Hastings, R. P., Abbott, D., Beyer, S., Bradshaw, J., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Paris, A., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021). Coronavirus and people with learning disabilities study Wave 3 Results: September 2021 (Full Report). Coventry, UK: University of Warwick. ISBN: 978-1-871501-37-7. Report available at https://warwick.ac.uk/fac/soc/cedar/covid19-learningdisability/results/wave3results

 

Flynn, S., Bailey T., Hastings, R. P., Hatton, C., Abbott, D., Beyer, S., Bradshaw, J., Caton, S., Gillooly, A., Gore, N., Heslop, P., Jahoda, A., Maguire, R., Marriott, A., Oloidi, E., Mulhall, P., Scior, K., Taggart, L., & Todd, S. (2021). Coronavirus and people with learning disabilities study Wave 1 Results: March 2021 (Full Report). Coventry, UK: University of Warwick. ISBN: 978-1-871501-36-0 


Northway, R., Oloidi, E., & Rees, S., (2020) Learning Disability Health Communication Tool - Final Report. Welsh Government  


Northway, R., Oloidi, E., Morgan, R., Price, K., & Churcher, C. (2020) Learning Disability Educational Framework for Healthcare Staff in Wales - Final Report. Welsh Government


Hopes, P., Oloidi, E. O. & Yu, J., (2018) The Role of the Learning Disability Nurse in Supporting Children, Young People and their Families: A Literature Review and Critical Appraisal: 2000-2018. 2 Apr 2018, Public Health England. 49 p.



Stacey Rees


Northway, R., Oloidi, E., & Rees, S., (2020) Learning Disability Health Communication Tool - Final Report. Welsh Government  



Rachel Morgan


Northway, R., Oloidi, E., Morgan, R., Price, K., & Churcher, C. (2020) Learning Disability Educational Framework for Healthcare Staff in Wales - Final Report. Welsh Government


Ruth Northway


Oloidi, E, Rees, S., and Northway, R. (2021) The Development of a Health Communication Tool (HCT) in Wales: A three-stage parallel mixed methods study. Oral presentation at the virtual 6th IASSIDD Europe Congress, 2021, July 5-8, 2021, Amsterdam, Holland.  


Rees, S., Oloidi, E, and Northway, R. (2021) Reflections on conducting focus groups with people with intellectual disabilities. Oral presentation at the virtual 6th IASSIDD Europe Congress, 2021, July 5-8, 2021, Amsterdam, Holland.   


Crowther, F., Northway, R. (2019) Relationships in an inclusive research team. Concurrent presentation at the International Association for the Scientific Study of Intellectual Disability World Congress, Glasgow, August 2019


Northway, R. (2019) Health inequalities through an ethical lens. Concurrent presentation at the International Association for the Scientific Study of Intellectual Disability World Congress, Glasgow, August 2019


Northway, R. (2019) Leadership and patient outcomes. Plenary presentation at the Leadership Conference, University of Malta, 21st May 2019


Northway, R. (2019) Nursing approach to the holistic care of patients with intellectual disabilities. Invited ‘Meet the Nurse Expert’ Session at the European Society of Endocrinology Congress. Lyon, France, 19th May 2019


Northway, R. (2019) Compassionate opinions: patient ad audience voices. Invited talk at the RCN Wales Leadership Summit, 27th March 2019.


Northway, R. (2019) My leadership journey. Invited presentation for the Florence Nightingale Learning Disability Nursing Leaders Programme, London 13th March 2019


Northway, R. (2019) People with learning disabilities, inclusion and research. Invited talk at the CASCADE Learning Disability EXCHANGE event, 12th March, Nelson, South Wales.


Northway, R. (2019) Promoting participation. Invited keynote presentation at the HAMK International Health and Well-being week, Hameenlinna, Finland, 18th February 2019


Northway, R. (2018) Identity, intersectionality and intellectual disabilities. Concurrent session at the IASSIDD Europe Conference, Athens, July 2018


Northway, R. (2018) Making a difference. Keynote presentation at the Positive Choices Conference, Dublin, 20th April 2018.


Northway, R. (2018) Changes, challenges and opportunities. Keynote presentation at the Positive Commitment Conference, Dublin, 20th April 2018


Northway, R. (2017) The ethical implications of facilitating the involvement of groups considered ‘vulnerable’ in the development of research. Concurrent session presented at the RCN International Research Conference, Oxford, April 2017


Brown, M., Taggart, L., Truesdale, M., Northway, R., Karatzias, T. (2016) Caring for adults with intellectual disabilities and type 2 diabetes: The experiences of professionals. Peer reviewed concurrent oral presentation at the International Association for the Scientific Study of Intellectual and Developmental Disabilities World Congress, Melbourne, Australia


Northway, R. (2016) Reflexivity, qualitative research and the PhD process. Peer reviewed concurrent oral presentation at the RCN International Research Conference, Edinburgh.


Northway, R. (2016) Exploring the views of student and registered learning disability nurses to research. Invited plenary presentation at the ‘Swimming upstream’ research teaching conference held at the University of Leeds.


Northway, R. (2016) Developing the evidence base: fostering clinical research among RNIDs/ RNLDs. Invited plenary presentation to the National Board for Nursing Ireland Intellectual Disability Nursing Conference, Dublin.


Northway, R. (2016) Leading nursing research – The Royal College of Nursing (UK). Invited plenary presentation to the Investen International Research Conference, At Coruna, Spain.


Northway, R. Brown, M., Taggart, L., Truesdale, M. (2016) Diabetes prevalence and experience amongst people with intellectual disabilities: a systematic review. Peer reviewed concurrent oral presentation at the International Association for the Scientific Study of Intellectual and Developmental Disabilities World Congress, Melbourne, Australia


Northway, R., Jenkins, R., Holland-Hart, D. (2016) Meeting the age-related health needs of people with intellectual disabilities: The support needs of residential social care staff. Peer reviewed poster presentation at the International Association for the Scientific Study of Intellectual and Developmental Disabilities World Congress, Melbourne, Australia


Taggart, L. Truesdale, M., Brown, M., Karatzias, T., Northway, R., Walley, R. (2016) DESMOND-ID: Outcomes of a pilot feasibility study exploring the HbAc for adults with intellectual disabilities and type 2 diabetes. Peer reviewed concurrent oral presentation at the International Association for the Scientific Study of Intellectual and Developmental Disabilities World Congress, Melbourne, Australia


Jenkins, R. Northway, R. (2015) Meeting the health needs of older people with intellectual disabilities living in residential services: implications for inter-professional working. Peer reviewed concurrent oral presentation at the Health and Well-Being in Developmental Disabilities Conference, University of Toronto, Canada.


Northway, R. Jenkins, R. (2015) Researching together to promote health and well-being of people with intellectual disabilities: the potential contribution of participatory research approaches. Peer reviewed concurrent oral presentation at the Health and Well-bring in Developmental Disabilities Conference, University of Toronto, Canada



Katja Valkama

People with intellectual disabilities and smart welfare services. [Sari Miettinen & Raija Koskinen]. Presentation at IASSIDD 2019 Conference, Glasgow, UK  


People with ID in the middle of reforming the Finnish social and health care. [Sari Miettinen & Raija Koskinen]. Presentation at IASSIDD 2019 Conference, Glasgow, UK 


Sustainable care. [Patricia Scherer Bassani, Kirsten Maibom, Helle Svenningsen & Dorthe Sørensen]. Sustainable society and technology: Beyond Alliance for Knowledge Seminar BAK 2019, Hämeenlinna, Finland   


Steve Walden

Seattle Club Conference for research on intellectual and developmental disabilities Poster: Barden O., Walden, S.J., 2019, Archives and Belonging: Exploring Histories of Learning Disabilities


Beth Pickard


Pickard, B (2020), 'A Qualitative Content Analysis of Welsh Universities’ Disability Service Websites and Consideration of Their Potential Impact on Recruitment of Diverse Learners: A Critical Disability Studies Perspective' National Association of Educators in Practice Conference 2020, Birmingham, United Kingdom, 24/04/20 - 24/04/20.


Pickard, B (2020), 'Collective Responsibility for Note taking: Reflections on the Unanticipated Outcomes of a Pedagogical Research Project' National Teaching Fellows / CATE Symposium 2020, Birmingham, United Kingdom, 5/03/20 - 6/03/20


Pickard, B (2020), 'What are Welsh Universities’ Websites Telling Disabled Applicants About their Interpretation of Disability?' National Teaching Fellows / CATE Symposium 2020, Birmingham, United Kingdom, 5/03/20 - 6/03/20


Thompson, G., Elefant, C., Roginsky, E., Metell, M., & Pickard, B (2019), 'What Can the Neurodiversity Movement Offer Music Therapy?' European Music Therapy Conference, Aalbog, Denmark, 26/06/19 - 30/06/19


Coombes, E., Maclean, E., Oldfield, A., Roberts, A., & Pickard, B. (2019), 'Music therapy and autism: a spectrum of approaches across the lifespan - what does this mean for the profession?' European Music Therapy Conference, Aalbog, Denmark, 26/06/19 - 30/06/19


Davies, B & Pickard, B (2019), 'Artistic Voices in The Grimms’ Woods: A Creative Collaboration of Inclusive Theatre, Special Education and Higher Education' Paper presented at Broken Puppet 3 International Symposium, Birmingham, United Kingdom, 17/04/19 - 18/04/19


Pickard, B (2018), 'Construction of Normalcy and Diversity in Music Therapy Theory and Practice' Paper presented at Disability Studies Conference, Lancaster, United Kingdom, 11/09/18 - 13/09/18


Pickard, B (2018), 'A Holistic, Humanistic Perspective on Music Therapy: Integrating Carl Rogers' Person-Centred Approach' Nordic Music Therapy Congress, Stockholm, Sweden, 7/08/18 - 12/08/18


Pickard, B (2018), 'Differentiation as Celebrating an Able Identity or Perpetuating an Ableist Perspective?: Critical Perspectives on an Evidence Based Approach for Instrumental Tuition for Musicians Who Have Down’s Syndrome' Cripping the Muse, Leeds, United Kingdom, 4/07/18 - 5/07/18


Pickard, B (2018), 'Vaguely Artistic: Disabled Musicians as Experts in an Inclusive Community Music Project in Higher Education, From a Social Confluence Perspective”' Cripping the Muse, Leeds, United Kingdom, 4/07/18 - 5/07/18


Pickard, B (2018), 'Social Construction of Disability: Parallel Process in Arts Therapies Education and Practice' Paper presented at Creating Inclusive Postgraduate Cultures and Communities, Bristol, United Kingdom, 2/07/18 - 3/07/18


Stuart Todd


Bernal, J., E. Oloidi, S. Todd and R. Morgan (2019) End of life care of people with Down Syndrome (DS).  Journal of Intellectual Disability Research, 63, 642. IASSID World Congress, Glasgow, 2019


Bernal, J. Todd, S. and Hunt, K. (2019) Why are the unanticipated deaths of people with intellectual disabilities important for their end of life care? Towards a typology of unanticipated death.  Journal of Intellectual Disability Research, 63, 642. IASSID World Congress, Glasgow, 2019


Todd, S., Bernal, J., K. Hunt, K., Brearley, S. and McCarron. M. (2019) Living in and dying in non-ID care settings Journal of Intellectual Disability Research, 63, 646


Todd, S., Bernal, B., Hunt, K. (2019) Dying with cancer in people with ID. Journal of Intellectual Disability Research, 63, 647. IASSID World Congress, Glasgow, 2019


Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, k., Finlay, I., and Hollins, S. (2019) The end-of-life trajectory and provision of end-of-life care for people with intellectual disabilities: a theoretical model. Journal of Intellectual Disability Research, 63, 651. IASSID World Congress, Glasgow, 2019


Tuffrey‐Wijne, I., Bernal, J., Finlayson, C., Lam, Taggart L., and Todd, S. (2019) The challenges of communicating about death with adults with intellectual disabilities (ID) who face terminal illness or bereavement: insights from a UK‐wide survey of staff working in supported living and residential care settings Journal of Intellectual Disability Research, 63, 651. IASSID World Congress, Glasgow, 2019


J. Bernal; S. Todd; J. Shearn; K. Hunt; W. Rhian (2018) Expecting the unexpected. Awareness of impending death among adults with Intellectual disabilities and paid carers in social care settings in the UK Journal of Applied Research in Intellectual Disabilities, 31: 6046. IASSID European Congress, 2018, Athens


Bernal, J., Todd, S., Shearn, J., Hunt, K. and Worth, R. (2018) Expecting the unexpected: awareness of impending death among adults with Intellectual disabilities and paid carers in social care settings in the UK.  Journal of Applied Research in Intellectual Disabilities, 31: 6046. IASSID European Congress, 2018, Athens


Todd, S., Bernal, J., Shearn, J. and Worth R. (2018) Health and social profile of people with intellectual disabilities living in non‐intellectual disability long term care settings. Journal of Applied Research in Intellectual Disabilities, 31: 5536. IASSID European Congress, 2018, Athens


Todd, S., Shearn, J. and Worth, R. (2018) Hidden lives and deaths: people with ID living in generic care settings.  Journal of Applied Research in Intellectual Disabilities, 31:5704. IASSID European Congress, 2018, Athens


Todd, S., Bernal, J., Finlayson, J., Lam, C., Taggart, L. and Tuffrey‐Wijne, I. (2018) Talking about dying with people with ID who have experienced a bereavement: a UK survey of support staff.  Journal of Applied Research in Intellectual Disabilities, 31:5697. IASSID European Congress, 2018, Athens


J. Bernal; J. Finlayson; C. Lam; L. Taggart; S. Todd; I. Tuffrey‐Wijne (2018) Talking about dying with people with ID who have a terminal illness: a UK survey of support staff.  Journal of Applied Research in Intellectual Disabilities, 31:5587. IASSID European Congress, 2018, Athens


Todd, S., Jones, E., Lowe, K., Forrester‐Jones, R., Shearn, J. and Worth, R. (2018) Where you live and die?: A comparisons of end of life outcomes for expected deaths in people living in social care ID settings.  Journal of Applied Research in Intellectual Disabilities, 31:5928. IASSID European Congress, 2018, Athens


Edward Oloidi


Oloidi, E, Rees, S., and Northway, R. (2021) The Development of a Health Communication Tool (HCT) in Wales: A three-stage parallel mixed methods study. Oral presentation at the virtual 6th IASSIDD Europe Congress, 2021, July 5-8, 2021, Amsterdam, Holland.  


Rees, S., Oloidi, E, and Northway, R. (2021) Reflections on conducting focus groups with people with intellectual disabilities. Oral presentation at the virtual 6th IASSIDD Europe Congress, 2021, July 5-8, 2021, Amsterdam, Holland.   


Oloidi, E., and Northway, R., (2019) Public Perceptions of Personal & Sexual Relationships of Adults with Intellectual disabilities: A Qualitative Exploration of the Influence on Social Care Workers’ Attitudes, Beliefs & Behaviours: Poster presentation at the IASSID World Congress, 2019, Glasgow, UK


Oloidi, E., Northway, R., and Prince, J. (2018) A mixed methods investigation into how perceived public perceptions regarding personal and sexual relationships amongst adults with intellectual disabilities might influence social care workers’ attitudes, beliefs and behaviours: Qualitative Stage One. Oral presentation at the IASSID European Congress, 2018, Athens 


Oloidi, E., Northway, R., and Prince, J. (2018) A mixed methods investigation into how perceived public perceptions regarding personal and sexual relationships amongst adults with intellectual disabilities (ID) might influence social care workers’ attitudes, beliefs and behaviours: Quantitative Stage Two. Poster presentation at the IASSID European Congress, 2018, Athens


Oloidi, E., Northway, R., and Prince, J. (2018) Public perceptions of sexual relationships and intellectual disabilities: researching the influence on social care workers’ attitudes, beliefs and behaviours: stage one. Poster presentation at the Seattle Club Conference 2018, Shrewsbury, UK  


Oloidi, E., and Northway, R. (2018) A mixed methods investigation into the perceived influence of public perceptions of sexual relationships and learning disabilities on practitioners’ attitudes, beliefs and behaviours. Poster presentation at the International Conference on Disabilities in Africa 2018, Abuja, Nigeria


Oloidi, E., and Northway, R. (2018) Public perceptions of sexual relationships and learning disabilities: researching the influence on social care workers’ attitudes, beliefs and behaviours. Oral presentation at the Mencap Friendships/Relationships Seminar 2018, Bangor, North Wales.


Oloidi, E., and Northway, R. (2017) ‘An investigation into the perceived influence of public perceptions regarding personal and sexual relationships amongst adults with intellectual disabilities on social care workers’ attitudes, beliefs and behaviours.’ Oral presentation to the Welsh LGBT Action Group, 2017, Cardiff.


Michelle Culwick


Culwick, M. (2014) The Abuse of Disabled Children: An Exploration of Social Workers’ experiences. Presentation at the International Family Violence and Child Victimization Research Conference. 2014, New Hampshire .USA.


Carmel Conn


Carmel, C. (2021) Evaluation of the impact of professional learning for additional learning needs in the further education sector in Wales, UK, European Conference of Educational Research (ECER), Geneva (online), 6-10 September.


Conn, C. (2019) Socio-material realities of learning for autistic pupils in inclusive education. European Conference of Educational Research (ECER), University of Hamburg, 6 September 2019, Hamburg

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Conn, C. (2019) Consideration of additional learning needs (ALN) in the process of curriculum reform in Wales. British Educational Research Association (BERA) Annual Conference, University of Manchester, 12 September 2019.


Conn, C. (2019) An evaluation of a regional teaching and leadership framework as a mediator for national policy. British Educational Research Association (BERA) Annual Conference, University of Manchester, 12 September 2019.


Conn, C. (2019) Exploring professional knowledge landscapes in inclusive education for autistic pupils. Faculty of Life Sciences and Education Annual Conference, University of   South Wales, 4 July 2019.


Conn, C. (2018) Meeting additional learning needs (ALN) in mainstream education in the development of the new curriculum for Wales. Successful Futures for All Symposium. Wales Institute of Social and Economic Research and Data. (WISERD) Annual Conference, University of South Wales, 18 July 2018.


Carmel, C. (2017) Responding to autistic sociality in conversations with pupils about their learning. British Educational Research Association (BERA) Annual Conference, University of Sussex, 5 September. 

 

Carmel, C. (2017) Negotiating deficit discourses of autism in narrative inquiry: sibling xperiences of childhood play. Nordic Network on Disability Research, Orebrö University, Sweden, 3 May.


Stacey Rees


Rees, S., Oloidi, E, and Northway, R. (2021) Reflections on conducting focus groups with people with intellectual disabilities. Oral presentation at the virtual 6th IASSIDD Europe Congress, 2021, July 5-8, 2021, Amsterdam, Holland. 


Oloidi, E, Rees, S., and Northway, R. (2021) The Development of a Health Communication Tool (HCT) in Wales: A three-stage parallel mixed methods study. Oral presentation at the virtual 6th IASSIDD Europe Congress, 2021, July 5-8, 2021, Amsterdam, Holland.  


TRAC and Rees, S. (2020): ‘Relationships and Loss’ Social History of Learning Disability Conference (July 2020)


Rees, S. (2019) An exploration of the role of the community learning disability nurse supporting adults with learning disabilities to access secondary healthcare. Shaping the Future of Intellectual Disability Nursing - Developing Nursing Capacity Capability and Nursing Leadership – Advancing the Role’ Annual Conference, Dublin, October 2019


Rees, S. (2019) An exploration of the role of the community learning disability nurse supporting adults with learning disabilities to access secondary healthcare. ‘RCN 100 Years of Learning Disability Nursing’ conference, December 2019.


Rees, S. (2019) The role of the community learning disability nurse supporting adults with learning disabilities to access secondary healthcare. IASSID World Congress, Glasgow, 2019


Kathy Lowe


Lowe, K. (2019) Putting Positive Behavioural Support into practice: the challenges of workforce training and development. The British Institute for Learning Disabilities International and Annual Conferences 2015 – 2019 



Dawn Cavanagh

Cavanagh, D. (2019). August Health Checks and After Health Checks Study - A qualitative longitudinal study. Annual health checks for people with intellectual disabilities: An exploration of experiences, follow up and self-management of health conditions.  Scientific Study of Intellectual Disability World Congress, Glasgow, August  2019.


Cavanagh, D. (2019).   How can critical reflexivity of the research process enable researchers to make better use of qualitative interview methods with people who have an intellectual disability?  Scientific Study of Intellectual Disability World Congress, Glasgow, August 2019.


Cavanagh, D.  (2019). Health Checks and After Health Checks Study - A qualitative longitudinal study. Annual health checks for people with intellectual disabilities: An exploration of experiences, follow up and self-management of health conditions.  PRIME Centre Wales Annual Meeting 2018, University of South Wales, Pontypridd, November 2018.